Property, personality rights and data protection with regard to biobanks: A layered system with Germany as an example

Research output: Contributions to collected editions/worksChapterpeer-review

Authors

  • Jürgen Simon
  • Jürgen Robienski

This chapter is a discussion and analysis of the concept of property in the context of genetic research and biobanking. The authors are proposing a novel way of conceptualizing the concept of property, one which could unravel many difficulties that beset bioethical and legal debates on this issue. Once a certain part of the body is taken out, to what extent could the person from whom the tissue has been separated claim property right over the tissue? If the tissue is completely anonymized, then the person loses her right to claim the tissue to be her property. The linking could then be done by way of pseudonymization. Furthermore, the trustee model where the tissue is safeguarded and pseudonymized by a trustee could act as the middle path between complete retention of personal and property rights of the alienated tissue on the one hand, and complete disregard of the property or ownership rights to the tissue on the other.

Original languageEnglish
Title of host publicationGenomics and Bioethics : Interdisciplinary Perspectives, Technologies and Advancements
EditorsSoraj Hongladarom
Number of pages7
PublisherIGI Global Publishing
Publication date2010
Pages256-262
ISBN (print)9781616928834, 1616928832
ISBN (electronic)9781616928858
DOIs
Publication statusPublished - 2010

    Research areas

  • Law

Recently viewed

Publications

  1. A Dying Theory? A Critical Assessment of Some Aspects of Status Inconsistency Research 1950-1983
  2. Cognition, consciousness and business ethics - the role of implicit social cognition in moral management behaviour
  3. Pre-startup planning sophistication and its impact an new venture performance in Germany
  4. The role of space in the emergence and endurance of organizing: How independent workers and material assemblages constitute organizations
  5. Biodegradation of the Antituberculosis Drug Isoniazid in the Aquatic Environment
  6. Per un'etica della distruzion
  7. The Importance of School Leaders’ Attitudes and Health Literacy to the Implementation of a Health-Promoting Schools Approach
  8. Medienidentitäten
  9. Relationship and Participation
  10. Räumliche Ökonomie
  11. A multi-level assessment of changes in stakeholder constellations, interest and influence on ecosystem services under different landscape scenarios in southwestern Ethiopia
  12. International sojourn experience and personality development
  13. BYOD - Start in die nächste Generation
  14. Online intervention for prevention of major depression
  15. Per un'etica della distruzione
  16. International scaling of sustainability continuing professional development for in-service teachers
  17. Cybermobbing, Hatespeech, Sexting und Cybergrooming.
  18. Entwicklungsfähige Planungssysteme
  19. Diffusion and Decentralized Bargaining in International Organizations: Evidence from Mercosur’s Dispute Settlement Mechanism
  20. What is sustainability economics?
  21. Im freien Feld
  22. Measuring positive sustainability - A systematic literature review
  23. Energiemanagement
  24. Legacies of the Permanent Court of International Justice
  25. Platons politische Philosophie des Fleischesseropfers
  26. Is seashell powder suitable for phosphate recovery from fermentation broth?
  27. Michael Hoffmann. 2017. Stil und Text. Eine Einführung (Narr Studienbücher). Tübingen: Narr/Francke/Attempto
  28. Democratic Legitimacy in Regional Economic Organizations
  29. Reflexitvität und System. Die Debatte über Ordnung und Selbstorganisation in den 1970er Jahren“