TY - JOUR

T1 - Patient-reported outcomes in rehabilitation research

T2 - Instruments and current developments in Germany

AU - Moock, J.

AU - Kohlmann, T.

AU - Zwingmann, Christian

N1 - Funding Information: Furthermore, the KIDSCREEN project (Ravens-Sieberer et al. 2001; URL:http://www.kidscreen.org) funded by the European Union should be mentioned. The aim of the KIDSCREEN project is the cross-national development of a questionnaire measuring HRQoL in children aged from 8 to 18 years. Three versions are currently available: the KIDSCREEN-52 (long version), the KIDSCREEN-27 (short version) and the KIDSCREEN-10 index, all of which offer a global HRQoL score. The three questionnaires assess HRQoL from a child_s perspective in terms of physical, mental and social well-being. However, further research is needed to evaluate the benefit of these HRQoL instruments in pediatric rehabilitation. Funding Information: Assessing patient-reported outcomes is an essential element of health care evaluation in rehabilitation research. In 1998, the German Federal Ministry of Education and Research (BMBF) and the German pension insurance scheme established a funding program for rehabilitation research projects. The German Research Funding Program BRehabilitation Sciences^ contains eight research networks and maintains working groups across all of these research networks (URL:http://www.reha-verbund.de). Various self-administered instruments were developed in order to measure patient-reported outcomes and predictors, all adapted or improved within the framework of this funding program.

PY - 2006/12/1

Y1 - 2006/12/1

N2 - Monitoring the health status of patients has become a major activity in rehabilitation research in recent years. As a result, various self-assessment instruments have been developed, adapted or improved with the aim of measuring patient-reported outcomes and predictors. Among these are international instruments, such as the NHP or the SF-36, as well as those developed in Germany, such as the IRES, the FREM-17 or the SPE-scale. Some of the widely used international instruments, such as the NHP and SF-36, have been translated into German for application in Germany. All of these instruments have been thoroughly tested and validated in several studies. Current trends in statistical methods (e.g. responsiveness, Rasch scaling) as well as classical test-theoretical standards were taken into consideration in the development of these instruments. In this article, we provide a comprehensive review of five important assessment fields of rehabilitation research in Germany: health-related quality of life (generic, disease-specific, children and adolescents, preference-based), evaluation of specific therapy and education programs, motivation, screening for vocational problems and screening for comorbid disorders. The questionnaires are critically discussed, and perspectives for further research are specified. Although assessment instruments as the IRES or the SF-36 are well-established in rehabilitation research studies, there is still a need for further research to determine the best choice of instruments for a given purpose. The limitations of the questionnaires with respect to health care studies are also discussed.

AB - Monitoring the health status of patients has become a major activity in rehabilitation research in recent years. As a result, various self-assessment instruments have been developed, adapted or improved with the aim of measuring patient-reported outcomes and predictors. Among these are international instruments, such as the NHP or the SF-36, as well as those developed in Germany, such as the IRES, the FREM-17 or the SPE-scale. Some of the widely used international instruments, such as the NHP and SF-36, have been translated into German for application in Germany. All of these instruments have been thoroughly tested and validated in several studies. Current trends in statistical methods (e.g. responsiveness, Rasch scaling) as well as classical test-theoretical standards were taken into consideration in the development of these instruments. In this article, we provide a comprehensive review of five important assessment fields of rehabilitation research in Germany: health-related quality of life (generic, disease-specific, children and adolescents, preference-based), evaluation of specific therapy and education programs, motivation, screening for vocational problems and screening for comorbid disorders. The questionnaires are critically discussed, and perspectives for further research are specified. Although assessment instruments as the IRES or the SF-36 are well-established in rehabilitation research studies, there is still a need for further research to determine the best choice of instruments for a given purpose. The limitations of the questionnaires with respect to health care studies are also discussed.

KW - Health sciences

KW - Assessment

KW - Patient-reported outcomes

KW - Questionnaire

KW - Rehabilitation research

KW - Review

UR - http://www.scopus.com/inward/record.url?scp=33750686625&partnerID=8YFLogxK

UR - https://www.mendeley.com/catalogue/475e3961-b89c-3183-8fa0-49cee659dc30/

U2 - 10.1007/s10389-006-0065-1

DO - 10.1007/s10389-006-0065-1

M3 - Scientific review articles

AN - SCOPUS:33750686625

VL - 14

SP - 333

EP - 342

JO - Journal of Public Health

JF - Journal of Public Health

SN - 0943-1853

IS - 6

ER -