Group consent in population based research

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We showed in our presentation that both the informed as well as the community consent are indispensable elements for the collection, processing, use and transferral of indigenous samples and data. At the same time we find that these elements must be adapted to specific local as well as regional cultural particularities in order to function as effective standards. Moreover, these two instruments are not sufficient, but must be supplemented by further instruments. One major one is an international control agency which should be organized based on the principle of the charitable trust.

Original languageEnglish
JournalJournal International de Bioethique
Issue number3
Pages (from-to)49-67
Number of pages19
Publication statusPublished - 09.2008

    Research areas

  • Law
  • Clinical trial, Community consent, Human experimentation, Human groups, Social Justice, Humans, Bioethics, Freedom, Informed Consent, Research/standards, Social Identification, Interpersonal Relations, Culture