Property, personality rights and data protection with regard to biobanks: A layered system with Germany as an example
Publikation: Beiträge in Sammelwerken › Kapitel › begutachtet
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Genomics and Bioethics: Interdisciplinary Perspectives, Technologies and Advancements. Hrsg. / Soraj Hongladarom. IGI Global Publishing, 2010. S. 256-262.
Publikation: Beiträge in Sammelwerken › Kapitel › begutachtet
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TY - CHAP
T1 - Property, personality rights and data protection with regard to biobanks
T2 - A layered system with Germany as an example
AU - Simon, Jürgen
AU - Robienski, Jürgen
PY - 2010
Y1 - 2010
N2 - This chapter is a discussion and analysis of the concept of property in the context of genetic research and biobanking. The authors are proposing a novel way of conceptualizing the concept of property, one which could unravel many difficulties that beset bioethical and legal debates on this issue. Once a certain part of the body is taken out, to what extent could the person from whom the tissue has been separated claim property right over the tissue? If the tissue is completely anonymized, then the person loses her right to claim the tissue to be her property. The linking could then be done by way of pseudonymization. Furthermore, the trustee model where the tissue is safeguarded and pseudonymized by a trustee could act as the middle path between complete retention of personal and property rights of the alienated tissue on the one hand, and complete disregard of the property or ownership rights to the tissue on the other.
AB - This chapter is a discussion and analysis of the concept of property in the context of genetic research and biobanking. The authors are proposing a novel way of conceptualizing the concept of property, one which could unravel many difficulties that beset bioethical and legal debates on this issue. Once a certain part of the body is taken out, to what extent could the person from whom the tissue has been separated claim property right over the tissue? If the tissue is completely anonymized, then the person loses her right to claim the tissue to be her property. The linking could then be done by way of pseudonymization. Furthermore, the trustee model where the tissue is safeguarded and pseudonymized by a trustee could act as the middle path between complete retention of personal and property rights of the alienated tissue on the one hand, and complete disregard of the property or ownership rights to the tissue on the other.
KW - Law
UR - http://www.scopus.com/inward/record.url?scp=84900113946&partnerID=8YFLogxK
U2 - 10.4018/978-1-61692-883-4.ch017
DO - 10.4018/978-1-61692-883-4.ch017
M3 - Chapter
AN - SCOPUS:84900113946
SN - 9781616928834
SN - 1616928832
SP - 256
EP - 262
BT - Genomics and Bioethics
A2 - Hongladarom, Soraj
PB - IGI Global Publishing
ER -